Beyond changing diapers: stress and decision-making among parents of girls with congenital adrenal hyperplasia seeking consultation about feminizing genital …
KM Szymanski, AK Salama, B Whittam, H Frady… - Journal of pediatric …, 2019 - Elsevier
Summary Introduction/Background The impact of having a child with atypical genitalia due to
a life-threating chronic medical condition like congenital adrenal hyperplasia (CAH) is poorly
understood. Objective The aim of the study was to determine parental stress and impact of
CAH on parental decisions, including decisions regarding female genital restoration surgery
(FGRS). Study design The authors surveyed consecutive parents of girls with CAH≤ 3 years
presenting at a tertiary referral center for FGRS consultation (2016–2019). The survey was …
a life-threating chronic medical condition like congenital adrenal hyperplasia (CAH) is poorly
understood. Objective The aim of the study was to determine parental stress and impact of
CAH on parental decisions, including decisions regarding female genital restoration surgery
(FGRS). Study design The authors surveyed consecutive parents of girls with CAH≤ 3 years
presenting at a tertiary referral center for FGRS consultation (2016–2019). The survey was …
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